Burden of ALS in Canada

1.Living with ALS
  • An estimated 3,000 Canadians are currently living with ALS
  • Approximately 1,000 die from ALS each year
  • Approximately 1,000 are diagnosed with ALS each year

Numerous conditions mimic ALS which could delay diagnosis. The patient journey from symptom onset to ALS diagnosis is long and usually involves some wrong turns.

Mean time between symptom onset and ALS diagnosis in Canada

Courtesy of the ALS Knowledge Network working group comprised of

Angela Genge, Montreal Neurological Institute, Montreal, Québec
Alan Goodridge, Memorial University, St. John’s, Newfoundland
Lawrence Korngut, Hotchkiss Brain Institute, Calgary, Alberta
Geneviève Matte, Centre Hospitalier de l’Université de Montréal, Montreal, Québec
Colleen O’Connell, Stan Cassidy Centre for Rehabilitation, Fredericton, New Brunswick
Lorne Zinman, Sunnybrook Health Sciences Centre, Toronto, Ontario


1. ALS Canada https://als.ca/what-is-als/about-als/
2. Richards D et al. J Neurol Sci 2020; 417:117054. doi: 10.1016/j.jns.2020.117054
3. Hodgkinson VL et al. Can J Neurol Sci. 2018;45(6):652–659.
4. Galvin M et al. BMC Health Serv Res. 2015;15(1):1–8.


Ensho Health is a Canadian digital healthcare services company that provides on-demand analysis of health information to match patients with clinical trials, build better real-world evidence and accelerate rare disease diagnosis and treatment.

This initiative is supported by Mitsubishi Tanabe Pharma.

EOCI is the organizing committee and medical education partner for this initiative.